Diagnosis addition: three speeds of ALS – fast progressing which normally starts in the upper body – not us! Slow progressing – which starts in the feet and is very slow in movement- not us either. Our ALS is fast but started in the feet. It can be slowed for 3 months with meds but it is insidious and shall steal her life. We hope in Christ to show the Drs that there is a God
We just received this note: As you may have heard over the past 24 hours, phase 2 clinical trial results have shown that a new drug “slowed ALS progression in a statistically meaningful and clinically relevant way.” The ALS Association, which supported […]
The Journey continues. Spent a lot of time thinking this week about how we choose to live our time together. Celia announced that she has read a number of articles about survivors of ALS and the length of time they survive after […]
She told me 44 years ago that it’s until death do us part!! The anxiety and pain hit today and I imagine will hit again and again; “She is leaving me” not by choice nor by her own volition but it feels […]
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Maria and I are praying daily for Dave ‘N’ Celia. We have not received or read any recent updates re Celia, and have been out of communication significantly, as we sold our Missouri home and are RV traveling full time. We may need technology advising from Dave! We look forward to reconnecting with our dear old friends! 627-297-8844